Jarod, Ben & Grace..... my rainbows.

Friday, June 22, 2012

Here's a story I wrote about Ben for a fundraising page for the Tourette Syndrome Society of Australia.

Ben, my 9 year old son was diagnosed with Tourette Syndrome at the age of 5. Tourette Syndrome is a Neurological Disorder that causes the body to tic with motor, facial & oral tics. In the past 4 years Ben has over come so many hurdles. Tourette Syndrome for Ben means that his body tics, all his waking day. It never stops. Ben has severe tics. Most of the time he can suppress the majority of them until he gets home. But no matter what, they MUST come out. Having 3 children with 'extra' needs & all of them varying, I've had some life experience with a few special needs; Down Syndrome, Aspergers, Tourettes, ADHD, OCD & ODD. I've said many times in the past 4 years if I had a choice to cure one diagnosis that my children have, it would be Tourettes. I would literally give an arm if it meant Ben could have control over his own body again. If we could raise enough money to find a cure for TS without intrusive brain surgery, I would be one very ecstatic Mummy. Tourettes 'steals' Ben away from himself & us & it's so difficult for him to be himself, for his real personality to shine through. Raising this money will raise awareness & awareness raises research, research needs money.... you know how it goes. At the very least I'd love for there to be a way to make Ben's life easier. For those of you who know Ben, you would know him to be cheeky, funny, extremely fit & physically gifted in everything he does. You would also know that he's kind considerate & caring. He's loving & generous & has empathy for others. His school report last year stated that "Ben would be an asset in any classroom, he can make anyone smile." That in itself is an achievement when ones brain loses control of ones body. Ben has to try so much harder then the general population to maintain his demeanour, to focus on his school work (which he does brilliantly :)& we do regular trips to the Chiropractor to get his neck & back realigned as the tics throw them out & cause migraines for him. As for his smile, it's beautiful & lights up the world. I can only imagine the smile on his face when he finds out what we are doing for him and others like Ben who have TS & similar Neurological disorders. And what a better way to raise funds then by doing something to get them! I have weight to lose.... not just a little, but ALOT. By raising money for Ben, I PROMISE to work hard, so I can be the best Mum I can be for my children. Every one who donates will be invited to join a secret group on facebook, with all my weight loss goals & a before photo & a photo each week & weight loss updates. I'll even put my food on there if you want! I'm putting myself out there & making myself vulnerable, just like Ben does, every time he walks out the door. Thank you all SOOO much... Lots-a-love,
Mandy xxxx
ps... I'm making the goal amount $900 because Ben's favourite number is 9.

My interpretation of 'Special Needs'.

I wrote this a while ago.
It's what started me thinking I'd like to blog things like this.

Doesn't everybody have a special need of some sort?
Doesn't everybody have something different from the next person?

I think my heart has special needs. I think I needed to be shown a love like no other. A love that a child with disability brings. I'm not in anyway discounting the love that ANY child brings, but the love and protectiveness I have for my children, I feel, is stronger then the already natural immense feelings of protection that being a mother brings. I now have an even stronger feeling of protectiveness for all my children, and; I'm teaching them that every person is different to the next and there is no such thing as 'normal'.

I am without a doubt certain that I am a much better person now then I was a few years ago. Perhaps I get better with each child.
I am proud of myself for the good I teach my children and I do my best not to dwell on my mistakes...goodness knows we all make them.

And I say SORRY to my children. They need to know that I am only human and making mistakes is just a part of life, and being sorry for something and showing remorse is an amazing experience. It is strengthening for us and such a positive thing to teach.
To say sorry when you are wrong lets your children know that when you say something and stand up for what you believe in and NOT say sorry, shows them that you will defend them and not be weak against those who are cruel and unkind. They will know your strength. Your children will know that you mean what you say and they will feel safe with you because they know your heart, because you have shared it with them and trusted them with it and they in turn, will trust you.

A grudge is a burden that we can carry around without realising it, we are weighed down, anxious and apprehensive about things we are not sure of and certain people can trigger these emotions, even mwntioning their names can often do this.

Remember a grudge only affects you as a person, not the person you hold it against. The feelings you feel for someone, are only felt by you...not them.

Forgiveness is releasing yourself from the burden caused by allowing another persons actions to take place within your heart.

I don't know about you, but I have so much going on in my life and with trying to remember the simple day to day things, I'm not going to let someone whose actions I have allowed to hurt me, ruin my every day.

Forgive them.....then you are free from them. They have no hold on you and you are truly free.

Then...learn from it. Take the good and the bad from the situation and try to see what you can make from it and apply in a positive way to your life.

I am learning these things and enjoying my life with an abundance of happiness and pure joy. Money is not riches. I have little money but I feel I have an abundance of wealth. I have real happiness. I am learning to appreciate what I have and stopping to the smell flowers, to take in life's beauty, to listen, really listen and hear the wonders it speaks.

My children with 'special needs' are teaching me these things every day. (All 3 of my children have special needs).

My heart has special needs and my children have brought their special love and my heart is healing in the most special way.

I like myself these days. I never used to.

I don't mind my own company. I never liked sharing the same skin with myself.

I feel pain and happiness now. I used to be numb because I was too busy despising myself.

The feelings of love I have for my husband, children and the rest of my family are sometimes overwhelming and it's nice to sometimes bask in it and let it fill my emotional glass when it starts to feel half empty.

God has brought me the most precious of gifts. I am honoured. I have wondered if God made a mistake by giving me these wonderful, amazing, remarkable children and husband.
But when I look at my children (and all children for that matter) it's so profound.

GOD DOESN'T MAKE MISTAKES.

We all have special needs and those we think have more special needs than ourselves will often be the ones to teach you that you are in fact the one with special needs.

xx Mandy Elderfield xx
23rd March 2009

My teachers. The ones who fill my heart with joy xxx

GOD’S GRACE, MY GRACE.

This is a blog entry I started ages ago & just found in by 'draft folder'. It wasn't finished so I didn't publish it, but I'm going to publish it unfinished..... cos it's my blog and I can! hahaha



Each week in my children's school they have Chapel. Yesterdays sermon was about God's Grace.
It really got me thinking. Up on the screen were the words Grace = God's gift to us. (or something very close to that). And what a gift!

I see God's Grace through my children, all their colours that make our lives more interesting &; I realise that maybe I needed a constant reminder that God is there. He has given me 3 little miracles to remind me.
Grace had her name before she was born, therefore before her diagnosis & before I knew the true meaning of Gods Grace.
Now I see it everyday through my daughter (& of course Jarod & Ben). She is a constant reminder to me of how God wants us to be. Childlike in our faith...which she will probably always be. Giving  and loving...Grace is a constant source of happiness and can make even the grumpiest of people smile...an awesome gift of love. God is determined and never gives up. My little Grace is also very determined and never gives in to her apparent disability. I guess as far as disability goes, she is more able then disabled. What wonderful qualities she has.
I think that the negative attitudes of some people in regards to disability are more disabled then the "disability" itself.
My little Grace is more God like than I will ever be. She will be closer to measuring up to Gods worthiness without even trying, then I could ever be, even with every ounce of effort that I could possibly muster.

My little daughter Grace is an inspiration.
Her determination puts any I have to shame. Her happiness is contagious and she can find happiness in almost everything. She doesn't hold a grudge, she forgives easier than she angers and has an attitude to life that I can only think to describe as awesome.

I have done some things in my life that I am ashamed of. By God's grace, I am forgiven.
The phrase, "blessing in disguise" comes to mind.
When my daughter Grace was born with Down Syndrome, some may have felt sorry for us. Some may think I was being punished. But that couldn't be further from the truth.
I sometimes get the feeling that God wants me to forgive myself and sent me His Grace in the form of my daughter.
I see her as a gift from God. An amazing gift that I often don't feel worthy of having in my life. I'm not being negative, about myself, I am now on a voyage of self discovery as I go through each day. And Grace is a constant reminder that I CAN do it, because God sent her to me, because He knows I can do it.
So, because of God's grace, I am starting to have more self belief. More self esteem and the realisation that I do have some good qualities. Coming from a person who used to self loathe...this is a big step forward. It's not hard to fall back into old bad habits, but I have a constant reminder with me as I go about each day, that God loves me and Grace is a gift from God.
Some people may accept Gods grace in a more simple way, but I think God knew I needed it 'IN MY FACE' all day everyday. So He sent my children to me and to the world. 3 little faces in a world of uncertainty. 3 little faces who are changing the world one by one.

Jarod and Ben also have these wonderful gifts of beautiful attitudes and there are so many things to be learnt from a child with Tourettes Syndrome, ADHD and OCD. A child who can still function with his head stuffed full of "other stuff" that is almost torturous. I may get up and complain about the odd headache or the odd little pain, but really, what is that compared to what my children go through before they have even got out of bed!? Ben is sitting on my lap. It's almost 5am. We've been up since 3:15am. Interesting. He's trying to play a game and has to stop to tic every few seconds, but he still manages to enjoy his game. Amazing.

Saturday, October 29, 2011

For someone who wanted to start a blog, I'm terribly slack!

Hi again world,
I can't believe how bad I am at this blogging thing.
I have no idea if anyone ever checks it, as they can catch up with me on face book!
This year has seen a few changes, but I think they are mostly good ones.

I've decided that I need to distance myself from people who bring me down, dismiss my ideas as nothing & in general make me feel bad when I'm around them.
It's bizarre how relationships in life can be so weird, but I think that real relationships, friendships etc, should be reasonably easy...flow along etc.

I think of the friends I grew up with.... I can not talk to them for months & months & then we call each other & comfortably continue where we left off. Comfort. I don't think that all good relationships are meant to be easy, but I like the word comfortable.
My new friends, they don't know my past, they can't even imagine me as a rebellious teenager to the extent that I was. So they are like new clothes that I pick for myself. Sometimes they don't fit properly & you need to try something else. Some of them are beautiful & fit well, make you feel good & important.

Then there's the 'Pyjama friends'. My friends that I grew up with, the friends who went through my rebellious stage of life & still loved me. The ones that we share each others deepest darkest secrets with. They are my Pyjama friends.....you know, your favourite flannelette jammies that you can just relax with, the most comfortable item of clothing you own.
You what is so beautiful about this? I don't have just one Pyjama friend...I have 3.
I have some 'new shoe' friends that looked like a great pair of shoes, but then I realised I shouldn't have got heels, they just aren't me.
Then there's the friends I made 'accidentally' when through amazing circumstances we ended up 'shopping at the same store', we found each other unexpectedly, but it seems they are new 'Pyjama friends'. They aren't like the fave comfortable ones yet, but there are more of them that are more 'worn in' then I thought.
When I look at them, they know how I'm feeling & understand me. We are there for each other & honest with each other.
I love all my friends, but I adore adore adore my Pyjama friends.
Oh my hubby & my Chillies, beautiful, amazing family I have.
I am so grateful everyday for them. I am so blessed to have the most amazing children & husband. I have the best family in the world. My parents are the most beautiful people, they are kind, thoughtful & caring & always there for all of us, no matter what.
My brother, his wife, my niece & nephew....beautiful people.
I can't wait to see them all! I miss my parents & my brother,sis-in law & their babies more then words can say.
I have the best family in the world & the best friends in the world & the best husband....yep, definately the best husband in the universe. He's just beautiful to me, Jarod, Ben & Grace.

I am happy & I love my life.
mwah! xxxxxxx

It sometimes takes a hurt in one place to see what you really have

Wednesday, August 18, 2010

It's been a while...

Hi again.
It's been over 12 months since my last post.
Wow...where has the time gone?
Jarod is 10, Ben will be 8 next week & Grace will be 3 in November.
She has started putting two words together, & I've started understanding some of what she says, which is brilliant.
Barry & I are going along strong & happy. I think we make a great team.
I've started exercising regularly again & hopefully sooner rather than later, I'll be back to my trim self...which I miss soooo much. I'm eating well & am feeling better in myself.
I have some wonderful friends that are always there for me & I hope that they feel the same way about me. And if we are being the best friend we can be to all our friends, then we all have many best friends.
I can honestly say that my friends get the best out of me...& they bring out the best in me. Lucky for me, they are true friends & love me just as I am, many faults & all :) And I love them!

The update this year....I'll try to keep it brief, I have lots I want to get done today :)
I have started studying, Certificate 3 in Disability. When I'm finished I'll be qualified to work with people of all ages with disabilities. I'd really love to get into the advocacy side of it, maybe in schools etc.
Inclusion is something very important to the majority of all people, & it really is lacking in so many areas & ways.
I've also started cake decorating courses. I'm doing my second one now & I'm LOVING it.
It's so much fun.

Grace is running around, climbing & becoming quite destructive... a typical toddler I'd say :) She is showing fantastic comprehension skills & is learning to peddle her tricycle.... she hasn't quite got it, but she tries very hard & with her very long legs, strength & coordination, i don't think it will be far away.
Putting 2 words together, making animal sounds & their names, well I can understand it anyway, & lots of signing to go with her words, is making communication progression easier than expected.
Her fine motor skills are really good for her age & she is TALL TALL TALL! Taller than most of my friends children the same age as Grace (with & without T21).
The boys are going really well.
Jarod is excelling at school & has also been diagnosed with Tourette's Syndrome last year. And ADHD, & OCD he's not physically hyperactive, but his mind sure is! He reads novel after novel & is teaching himself ancient Greek off the internet. He can tell you the whole Greek alphabet, how you write it & how to pronounce it. All for fun of course. He has friends at school who are learning it from him & they email each other in Greek...it's very funny.
Ben has come along in leaps & bounds this year. His tics are getting progressively worse, which is saddening & frustrating but he's still making enormous progress.
His teacher this year is amazing & has helped us with Ben's self esteem, so now there are no signs of depression. Amazing. No more suicidal 7 year old... things are looking up that's for sure.
His teacher has worked very closely with both David (Ben's Dad) & I in making sure we keep up at home what she has started at school. She saw the need to lift Ben's self esteem & she knew that if he learnt to read that would help him, & was she right! My little boy can read so well now. He's caught up a year and a half in 8 months.
Here's a little bit of gossip... but it's good & I'm allowed to tell people :) It's more sharing news then isn't it? Well, the boys Dad came back from interstate this year & we share custody of the boys, it was hard at first adjusting from having then full time, it felt like they were ripped from me... that's just my feelings, not what actually happened. Now I'm ok with it & take the time the boys are away to focus on Grace & my marriage & also reflect on the week prior & see how I could improve my parenting with the boys & see where I got it right (sometimes that actually happens you know :).
Anyway, David, the boys Dad came & talked to me a while ago & told me that he & Ben's teacher had started dating. I was so happy I hugged him...and her when I caught up with her for coffee (we had port actually) to have a chat about it all. I let her know that I was ok with it & I wasn't going to make her & David's life hard. Besides, I'd told him 6 months ago to ask her out, didn't think he'd listen to me though... hehehe.
The reality of it is that he was going to meet someone one day, someone was going to be in 'that role' in my childrens lives, so as far as I'm concerned, we all got lucky! Georgie is an amazing woman, who certainly deserves to be happy. I've always admired her on a personal & professional level, ever since she taught Jarod a few years ago. I already know her somewhat & everyone that knows her loves her. There is no denying that she is fantastic & if i'd been given the job of choosing the woman to be step mum to my sons, Georgie would have been my first choice.
It's still early days, but she makes David happy, if he's happy, the children are happy. If the children are happy, then I am happy, if I am happy, Baz & Gracie are happy. It just keeps on going.
So, really, this blog is a good one, we are all happy :)

Hope you are all happy too!
Love Mandy xx

Tuesday, June 16, 2009

Who am I?

Hi again everyone,

Who am I is the question I have wanted answered for some time now. I'm sure many of you can relate to it.

I have done so many things in my life good & bad that I spent many years not having a clue who I was. I think the worst part of that were the years that I thought I knew, but I was merely just an existence & not a very good one at that.

These days I like myself more then I used to. I don't abuse my body like I used to. I don't abuse myself mentally so much either (the occasional slip up occurs of course).

BUT TODAY,
Today was an amazing day in my life. Touched by strangers & then coming to the realisation that I was touched by something I did also.

I was in a Christian bookshop today & bought some things & at the service desk, I told the gentleman how wonderful one of the books was & why I was now buying a copy for my Church library. After a brief story about why & how the book had impacted on my life, the man had tears in his eyes & said to me. "You are such a special mother." "I have seen you in here before with your daughter & I thought then that you were a special mother. I didn't know that you had 2 sons also. Now you have confirmed to me what I already thought". I was a bit speechless to say the least. I thanked him very much for his compliments. A mother puts so much guilt upon herself that getting such a profound compliment takes one by surprise & you just say "Thank you".
With that he picks up a piece of paper & hands it to me with the date & his signature on it. It's for a free coffee at the bookshop cafe. I was very very very grateful. I went to sit down & saw a care worker from another church that I used to go to. I sat with him & his friend Fay & we chatted.

THEN, the man that sold me my books & new CD came up to me & placed 2 cards down on the table & said "these are for you, from me".
The first one I read says: You are wonderful in God's eyes-- and in mine!
The unfading beauty of a gentle and quiet spirit is of great worth in God's sight.
1 Peter 3:4
It has a picture of tulips on it. It's very pretty & I love tulips. Tulips are in Holland & Grace's middle name, Lalah, means Tulip.

The second reads: I am all things through Him who strengthens me. Philippians 4:13
wow.
I enjoyed my coffee & managed to make a couple of new friends while there.

I went home & Grace had a sleep then it was time to pick up the boys from school.
On the way I noticed a mature lady walking down Main North Road away from a car. Considering she was in an isolated area of that road & considering her age, it wasn't hard to see she had broken down.
I couldn't leave her there. It wasn't safe for her. Especially given her age & the fact she was walking in the middle of nowhere. She was vulnerable. She obviously had no phone & she had a good walk before she reached a shop. I pulled the car over as she crossed the road in my direction. I offered to help her. I had no credit on my phone so I said I'd drive her to the next service station or pay phone. She accepted the lift & we drove. She was a lovely lady. I think she said her first name was Marlene. I remember her surname but don't want to write it on here. As we drove I realised that she would have too long to walk to get back to her car as there didn't seem to be anything around. So when we got to somewhere, I bought credit for my phone & called the RAA for her. During this call to them (she didn't want to talk) I had to give them her personal details. She will be 70 in November. Way too grand a lady to be walking that far alone.
We got back into my car & I called the school to let them know I would be late & why & they said they'd look after the boys for me til I got there. (I love that school...but that's another blog all of it's own. I love them all too much for just a few sentences).
Marlene put $10 down in my car. I told her no & told her to put it towards a mobile phone for herself (she KNEW she was in trouble from her family when they found out she broke down & didn't have a mobile phone like they'd been insisting she get).
When I tried to give it back to her, she was crying. I put my hand on her shoulder & said it was ok. Through her tears she said "you helped me". It took a lot for me to keep from crying myself. She said "I was just thinking what could have happened to me but you came & helped me".
I drove this very lovely beautiful lady (who had been out buying a gift for her Grandson) back to her car. The RAA had said they wouldn't be long so I went on my way to get the boys from school.
You wouldn't believe it, but as we got close to the spot I could see the RAA lights flashing & the man getting into his van. Marlene got into her car & drove off just as we went past her.
I almost cried again...yippee, she was on her way home to her family before it got dark & cold.
I am SO overwhelmed today it's incredible.
I did something good, but I didn't realise it at the time, just how much it meant to my new friend. I saw a woman who wasn't safe & I knew I could help her, so I did.
The whole time Gracie was talking & smiling at her new friend too.
I felt moved to the core by her gratefulness & later I realised that I must have touched her heart too. Her parting words were "Thank you & take care of your little ones."

She doesn't realise (& may never) how much she touched my heart & helped me a lot further on my road to finding out who I really am. & the discovery I made today, was a big one & I like it.

None of this I did alone. In fact I didn't make me like this at all.
God made me this way & is put people in my life when I needed it the most. Marlene probably thinks that I helped her & I did, but I'm sure she doesn't know that she helped me too.
Thank you God for making me me.
I still have a long road ahead, but I am so overwhelmed to be travelling on such a loving road.
I have the $10. What do I do with it? Do I donate it to Church tomorrow at the school Chapel service? Or do I donate it to the Down Syndrome Society that has lost so much of their funding? I don't feel right just spending it. It has to go somewhere good. What will I do? I know. I'll ask God.

Lots & lots of love
Mandy xx

Saturday, April 25, 2009

My first blog

Welcome to our blog!

I've been wanting to start a blog for some time now. I'm very excited to have finally taken the plunge.

I'll start with an over view of my life & explanation of the name of this blog. I'll try to make it brief, but for those who know me, I could talk the pants off a kangaroo & nothing I say is ever brief or lacking detail.

My name is Mandy. My husband Barry & I were married 31st December 2008. We are still newlyweds, so to speak.
There are 3 gorgeous children in our home. We have 'the boys', Jarod (he's 9) & Benjamin (hes 6) who are mine from my first marriage. Then there is Princess Grace. She is Baz's & my little girl & was born in November 2007.

'Living with Rainbows'. A rainbow has different colours to make a single rainbow, one of life's most beautiful natural occurrences. I compare my family to a rainbow. Many differences that, together, make our family the beautiful thing that it is. Each & every one of us brings something unique & brilliant, & without these things, we just wouldn't be the great family that we are.

Baz & I met on the internet about 3 years ago.
He liked my red hair. We got on really well & things progressed. After about 6 weeks, I invited him over for dinner to meet Jarod & Ben. I really liked this guy, so I had to see if the boys liked him too, cos if they didn't he'd have to go & I didn't want to wait any longer as I knew I was falling for him.

I needn't have worried. They loved him from the beginning. Baz comes from a large family (he has 2 brothers & 2 sisters), so had a very eventful childhood, getting up to all kinds of mischief, so he could really relate to the boys & their imaginations.

At first Baz & I would only meet up when the boys were with their Dad (we shared custody), as I didn't want to force anything onto the boys. I wanted to take it slowly for them. Then Baz would come over occassionally on the weekends & see the boys or for an hour or so during the week when the boys were with me so they could get to know each other.

I knew things were getting serious when the boys started asking "Is Bazza coming over today?" & I would say "no, not today" & the boys would beg me to call him & invite him over. This became an almost everyday occurence.

People often asked me in the beginning if the boys & Baz got along. That question always amazed me somewhat, as there's no way on this Earth that I would have brought a man into their lives that they didn't like or if he didn't like my children. I'd have shown him the door straight away.
They also didn't need a father. They already had one of those who they saw half the week.
Baz was a great friend to them & I eventually gave him a key to my house.
Another marker of 'knowing' he was the right man for 'us', was when I came home from work on a Thursday night to find a tyre swing hanging from the big tree in our backyard. My heart melted then & there. Baz had made it with a strong chain & had made it very secure (some would say overkill, but I say brillliant) so it wouldn't fall & was safe for the boys.
That weekend was so much fun. The boys eyes lit up & the tyre swing adventure had started.

Anyway, Baz ended up being at our house almost everyday, as I'd get into trouble from the boys if he wasn't there :)
It's a very scarey thing meeting a new man. It's one thing to find someone that you like & who likes you. But, to find someone who will fit into your childrens lives is another thing altogether.
Bringing someone new into their lives is going to be a life altering thing for them. I'm glad it was Baz that I met. He has altered our lives. In a wonderful way.
We currently have full custody of the boys (nothing nasty, their Dad is in the military & has been posted interstate), so Baz's role has been stepped up a bit. He has to dish out the occassional "time out, go to your room", & the boys protest of course, but at the end of the day, it's all good.

So, now we are married & have a daughter of our own. Grace Emily Lalah Elderfield was born 8 days early on 6th November 2007. I was originally booked into have a c-section the next day (7th Nov, my brothers birthday), but Grace had other ideas. I was in labour when I took the boys to school. I took the bus because my 'braxton hicks' contractions were 5 minutes apart & a bit painful. (after having 2 children already, you'd think i'd have known). Ben was still young & it was a playgroup day. I sat down & had a cup of tea. My friend, my good good friend, Jo is an intensive care & emergency nurse & mother of 2. She knew there was something up. She 'dobbed' on me to another friend, Pauline, who is a midwife. She put a hand on my huge belly & checked my pulse. After a while, Pauline asked me, "how long have these been 5 minutes apart?"
I told her since about 7am. It was now after 9am. She told me that she would feel better if I went to hospital & got checked. I thought I didn't need to as they were only braxton hicks...oh my how silly was I?
My lovely friend Leanne took Ben with her for the day & Jo & Paulines little ones too. Jo drove me in her car & Pauline sat behind me, going through each contraction with me, with reassuring hands. I felt so safe. Jo was driving & timing the contractions on the car clock. I told them to just drop me at the door, but they wouldn't have it. They weren't happy until they handed over 'custody of me' to a midwife. I found out later they were a bit concerned I was going to have the baby in the car. I had no clue. I think I was all set for not having to go through labour that I was in denial or something.
Safe in the hands of a midwife, Jo & Pauline went back to their children, no doubt sighing huge sighs of relief all the way back. :) :) :)
In all of this drama, I'd managed to call Baz at work & tell him he should probably meet me at the hospital, just in case.
Within half an hour of getting to the hospital, the contractions had become very strong & oh so painful. I'll not continue into the pain factor. The lovely Drs & Nurses took me to theatre & I had an emergency c-section. (I'd already had 2 c-sections for health reasons, so it was safer for me to have another one). Baz made it with plenty of time to spare & was there for it all.

A huge baby girl was pulled from my swollen belly. Grace was born 4250g. or 9lb 7 1/2 oz. BIG!
We got a very quick look at her & I kissed her first tear from her face. (yes, tears at birth!)
The midwife said she had to take our baby girl to the nursery to see the Paediatrician. I asked why, as you do. She said because our baby girl was so big, it was routine, then she added "there's something about the way she looks". She looked perfect to us.
"What do you mean?" I asked. "Her eyes & the back of her neck", the midwife said.
I knew immediately what that meant. (I just want to quickly add here that the Midwife said everything she did, in the most thoughtful, caring way. She was lovely).
"They think there's something wrong" I said to Baz. "Go with her & don't let her out of your sight". He didn't need telling, he was already on his way. I lay there, having my belly stitched while they took my baby. I said to the Drs & Nurses around me "They think my baby has Down Syndrome".
I was taken to recovery. The nurse that looked after me there was amazing. I so wish I could remember all their names. After what felt like an eternity, Baz came in to recovery. With him was the Midwife from theatre & a man. The mans name is Dr. Andy McPhee. AKA in our home as "The wonderful Dr McPhee".
Dr McPhee, came to my bedside & with the most perfect bedside manner, told me "I am 99% sure Grace has Down Syndrome". There was only kindness in his voice. He is a brilliant man.
That defining moment is life changing. Hearing those words is something that stays with you forever. So to remember back on that & remember how kind, caring & sensitive Dr McPhee was is something I'll never forget & something I'll always be grateful for.
He didn't say any negative words. There was no "Unfortunately or sorry" There were straight facts. No beating around the bush, just tactful considerate factful words. I now know that he didn't say unfortunately or sorry because there was nothing unfortunate or sorry about it at all. We had just been blessed with an amazing miracle of life. There are no words for how incredibly wonderful & perfect Grace is.

From that point until she was 6 months old, Dr McPhee was Grace's Doctor. And, from birth until our last appointment, he treated Grace & our family with the highest amount of care & respect. What an amazing man. Some people believe in God, some in Karma, some in other things. Myself, I am a Christian. So what ever you believe & understand, I pray & hope that Dr McPhee has a wonderful life & he & his family are blessed with great health & happiness. Dr McPhee did so many kind things for us. Things he probably has no idea of, but it's the small considerate things he did that helped us through. I had no idea about Down Syndrome. I didn't know what it meant. I was scared. He reassured us. In fact, I felt like we were treated like Royalty. He made sure I got to stay with my baby girl in the hospital until she came home with oxygen at 12 days old.

So, after I heard those words. I sobbed. I thought it was for a minute or so. Baz said it was more like 2 sobs. Then I said "I want to see my baby". I needed her & I wanted to hold her in my arms & tell her that it didn't matter. I already loved her. Her Daddy already loved her. I had a very strong urge to feed her at my breast & nurture her & protect her. I didn't want her to fear anything. I wanted her to know I was there & would always be there.
3 hours after she was born I was taken to see Grace. I was able to hold her & kiss her & tell her I loved her. It was the longest 3 hours of my life. Grace was perfect. She still is.

Grace is 17 months old now & wakes everyday with a smile on her face. She laughs constantly all day at everything. Life is wonderful. She is a teacher. Jarod & Ben adore her. She adores them. She laughs at them all the time. Jarod likes to carry her into her room at her bedtime. Ben tries to climb into her cot with her. He'd sleep in there with her if he could. Grace has never been one to cry, so we've never had to pace the hallways with her crying for hours on end.
The only times she has cried for more then half an hour (twice in her life), she has been very sick & was admitted to hospital.

Grace is a calming influence on us all. She makes us smile. She can even calm our 'Bouncy Ben'.
In the January after Grace was born, Ben was diagnosed with Tourette Syndrome & ADHD.
I cried all the way home in the car. Tears of relief. It wasn't my fault. I'd thought that his behavioural issues were a result of bad parenting or his Dads & my divorce. I thought I had ruined my little boy.
I hadn't. That afternoon we went straight to the Chemist & bought Bens Tourettes medication. That night was the first night I can remember that Ben went to bed when he was asked & without an argument. He sat still & ate his dinner. Something I had never seen before.
It took many months of trialling different doseages at different times to find a good balance for his meds but it seems finally we are moving in the right direction.

The tics are upsetting. They can sometimes hurt Ben & sometimes I cry when he's asleep or at school. He hates that he can't stop doing his tics. I wish they'd go away.
My 3 children see the same Paediatrician. He is wonderful. He specialises in behavioural disorders & Down Syndrome. I feel he has given me my son back. Ben is no longer just a child with issues. He was so naughty. I could not cope with him. Now, he is Ben. My Ben. Sure, he has some tics & he's very good at tantrums, but he's also brilliant. Ben is smart & funny & caring. He has the most sensitive heart. If Jarod or Grace get hurt, he will cry. He loves his brother & sister with a very intense love. I guess the word intense can be used to describe Ben, in everyway. When his behaviour is bad, it's intense. He can say & do very hurtful things. BUT, Ben loves intensely & cares intensely. He smiles intensely & lives his life with intensity. Not a moment is wasted & he's the biggest ball of energy I've ever seen.

We call him "Bouncy Ben". He's like a rubber bouncy ball. He bounces very high. There's not much he can't do & he has a vivid imagination. He loves jokes & mischief & loves to get dirty. He's a real boy. I love him so much. He is loud too, loud loud loud! hahaha. Jarod has no trouble hearing him, unless he's choosing to have selective hearing.

My first baby was dues on 11th February 2000. That morning I woke at 7am after a great nights sleep. Ouch, my first contraction. I knew there was something different about that pain & the next & the next. It was labour. The contractions weren't exactly evenly spaced, but they were between 5 & 10 mins apart from the first one. (As with all 3 labours).
Jarod was born at 11am that day. I had to have a c-section, but he had made up his mind to arrive on his due date. What a good boy & so he remained. After the first few months of crying (probably more me then Jarod), we had found our feet.
I had a great baby. Very happy & sociable. He liked to do everything perfectly. A perfectionist. He even took his very first steps & kept on walking on his 1st birthday. Brilliant.
Around that time I realised that someting was wrong. I didn't really know what, but my gut was telling me something wasn't right. After 6 months of going back to the Dr, I went to another Dr. I also saw the Early Childhood nurses. I said it's either Jarod or it's me, but I know there's something wrong with him. FINALLY, Jarod was referred to an ear nose & throat specialist & the Early Childhood people gave him a hearing test. Jarod had a moderate hearing loss. That explained alot. Like why Jarod laughed when his Dad would pick him up & make really loud noises right in his face. I would say to stop it because I thought it would scare Jarod, but as it turns out, Jarod loved it as it was probably one of the only sounds he had heard during the day.

At 17 months old, Jarod had his first operation. He's now had 4.
He now has only a mild hearing loss & has a hearing aid he can wear (when he hasn't lost it :)
When he's about 15 he can have another operation & they say they can most likely restore his full hearing. YIPPEEEEEEEE! I love modern medicine.
Jarod also has OCD, but that's another story for a different day. Also, I'm sure he wouldn't want me to write too much about it. It's only a new diagnosis, but something I've known since he was little. There's only so much someone can be a perfectionist until it becomes OCD.
Jarod is smart. He's very intelligent & has intuition & wisdom beyond his years & I love him so much.

So, you can see why I compare my family to a rainbow. It has so many beautiful parts to make it whole.

I didn't intend on writing so much in this first blog, but it's Saturday. The boys are due back tonight, Baz is here & Grace is asleep, so I had the time to write.
I'm not going to proof read this today. So I apologise for any mistakes.

Love Mandy xx














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